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Story so far...


From birth I have always been sick, born prematurely and deaf and by the age of eight I began having growth hormone injections to make me grow - obviously!
Then I was diagnosed with Russell Silver syndrome which is a form of dwarfism and carries with it mild learning difficulties so it was a struggle growing up!
Over the years I suffered with recurrent chest infections and this has followed me through to adulthood and at 21 I was hospitalised with pneumonia.
I was in and out of hospital for the next few years till eventually my mum demanded something be done - as mothers do!
It turned out I had a condition called IGG deficiency which is a low immune system and the reason for my chest infections and bouts of pneumonia and for this I receive a weekly infusion which I administer at home and will have to do this for the rest of my life.
I had been well for four years, no pneumonia, no hospital admissions - nothing, completely healthy and happy! 
Then last year I was back and forth to the doctors with chest infections nearly every week for a year, put on countless courses of steriods and antibiotics that I became immune to them and in and out of hospital at least 4 times in one year and received IV antibiotics occasionally.  I felt exhausted, depressed and like I was losing all control of my life and just about given up on the doctors ever finding a solution, anything to make things better, to give me my life back. All I wanted was to be able to play with my niece without ending up in hospital, to enjoy life, do things, have fun, to feel happy, excited and positive about things again without having to worry. I'd had enough of doctors telling me 'it was just a stubborn infection, it's caused by your RSS, just be sensible, stay away from sick people and be positive' but I'd never speak up for myself, I'd never tell them what I really thought, I'd just agree and nod my head and plaster a smile across my face, how's that for positivity! 
But thankfully I had a feisty mother that wouldn't back down, wasn't afraid to stand up and demand to be heard and because of her I have my life back! 
I'm now on long term antibiotics and my IGG infusion has increased, giving me a bit more immunity and although it is not an ideal solution, I haven't been in hospital for six months.
I think going through all that, I have learnt a few things, I've learnt to never give up hope, I've learnt that sometimes if you want anything done you have demand it, you have to shout about it in order to be taken seriously and I've learnt that I have an amazing mum! I am so thankful to God for blessing me with a mum that will speak up for me when I feel like I can't. Thank you mum and thank you God x
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Location: Edinburgh Edinburgh

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